Update On Matthew

Katie
Jun 12, 2015
3 min read

Last week was so busy that it kind of feels like a blur…. Between Therapy and Doctor Appointments and then getting sick it was a rough week on not only Matthew but on the whole family.

Matthew is doing well in his Occupational Therapy. We have started to identify some areas where Matthew needs help. Ms. Kim is amazing and Matthew is responding amazingly to her. Last Monday We did have a little mishap with some moon sand. Matthew was playing with it and found a plastic fork in the sand and was trying to get it out and ended up flinging some moon sand into Ms Kim’s eyes, it was a total accident but we had to end the therapy session early. This Monday Matthew was rather cranky at first but after a little bit Ms Kim got him to work a little bit. After a bit she had him on a scooter where he would lay on it and scoot down the hall to grab a puzzle piece and then scoot back down the hall to put it on the puzzle board. He was unsure at first but then he started to like it. Next week we move to Wednesday therapy and Mrs. Kim wants us to bring in Matthews Tricycle for therapy!

Matthew did not have feeding therapy last week because Ms. Amanda was out on Vacation. He had to miss this week because of being sick and having a fever. L There are a few things that we will be working on with Matthew with Ms Amanda; I’ll keep you updated on how that will go.

Thursday Matthew had to go see the Endocrinologist. When we first started the process of trying to figure out what is going on with little man there was lots of test run, one being Glucose and A1C both which came back elevated. So they did repeat blood work. Today I got an email from his Endo saying that the tests were normal but his fasting sugar was 104 and he wanted to check to see how long Matthew had been fasting that day. When I have any more information I will update on this.

Friday we had to take Matthew to see the pediatric Surgeon about the growth on his back. He decided that since he had another growth and since it is on his spine that it needs to be removed surgically and sent away for testing. He is not sure what it is but we should have answers soon. Matthews Surgery is scheduled for the end of this Month. I’m hoping he will have enough time to heal for his Pool party.

Monday the 8th we got to see Matthews GI for what we called “D-DAY” aka when we would find out if Matthew had to go on a feeding tube or not. YAY HAPPY NEWS Dr. O is happy with the progress Matthew has made weight wise, he said as long as Matthew continues to gain weight we will stay away from a feeding tube! We will have a check back in September

Matthews Dietitian wants us to try to work on getting him to accept the higher CAL PediaSure. It is a bit thicker so we will have to work with him on it. She wants us to work on getting him to eat breakfast each day at a certain time. Then work at getting him to eat each meal on a schedule but only take it in baby steps. Ideally Matthew should be eating 5 small meals a day, breakfast, snack, lunch, snack and then dinner. This is what we hope to accomplish in the next few years because of his SPD its gonna be a process.